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Wednesday, December 13, 2017

Resources

16:14 14 September in 2017 September/October, Jewish World
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Resources

Jewish Genetic Diseases And Hereditary Cancers 


Einstein Victor Center for the Prevention of Jewish Genetic Diseases
victorcenter.org | (877) 401-1093

Program for Jewish Genetic Health Affiliated with Albert Einstein College of Medicine.
einstein.yu.edu/centers/jewish-genetic-health(718) 430-2000

Jewish Genetic Disease Center of Greater Phoenix
jewishgeneticsphx.org | (480) 668-3347

Sarnoff Center for Jewish Genetics, Chicago
jewishgenetics.org | (312) 357-4718

Jewish Genetic Disease Consortium (JGDC)

Provides information and carrier screening along with resources for clergy and medical professionals.

jewishgeneticdiseases.org | (855) 642-6900

National Organization for Rare Diseases (NORD)

Provides information and services to patients and their families, rare disease organizations, clinicians and researchers and the pharmaceutical industry. Advocates for rare disease research, affordable medical treatment and orphan drug development.

rarediseases.org | (202) 588-5700

Counseling and Testing 


National Society of Genetic Counselors

Find a genetic counselor.

nsgc.org/page/find-a-genetic-counselor

JScreen

JScreen is a national non-profit initiative providing easy, at-home carrier testing on saliva for over 200 genetic diseases, including those most common in people with Ashkenazi, Sephardi and Mizrahi backgrounds. Genetic testing is recommended for anyone starting or expanding their family.

jscreen.org

Myriad

Since 1991, Myriad has remained the gold standard in Hereditary Cancer testing and life-saving research with over $1 billion in pioneering and life-saving research. Our commitment is to serve as both a trusted advisor to patients and healthcare professionals and a collaborator with the scientific community.

myriad.com

Counsyl

Offers DNA screening and genetic counseling.

counsyl.com

Hereditary Cancers 


Basser Center forBRCA at Penn Medicine’s Abramson Cancer Center

Funds BRCA research and provides education and genetic counseling.

basser.org | (215) 662-2748

Israel Cancer Research Fund

Supports cancer research in Israel with grants to outstanding cancer researchers whose labs are located in all the leading research institutions, universities and hospitals across Israel.

icrfonline.org | (212) 969-9800

Gift of Life Marrow Registry

Encourages marrow and stem cell donation through swab drives that register potential donors in the fight against blood cancer.

giftoflife.org | (561) 982-2900

FORCE

Raises awareness, collaborates with the research and medical communities and supports people with breast, ovarian and related cancers.

facingourrisk.org | (866) 288-7475

Breast & Ovarian Cancer


Sharsheret

Supports Jewish women and their families diagnosed with breast or ovarian cancer as well as those who have an increased genetic risk of developing cancer.

sharsheret.org | (310) 409-2330

Bright Pink

Educates young women ages 18-45 about prevention and early detection of breast and ovarian cancer.

brightpink.org | (312) 787-4412

Male Breast Cancer


Coalition (MBCC)

Provides resources and support for men diagnosed with breast cancer.

malebreastcancercoalition.org

Pancreatic Cancer


The Sol Goldman Pancreatic Cancer Research Center at The Johns Hopkins Hospital

A multidisciplinary approach to treating patients with pancreatic cancer and related conditions.

pathology.jhu.edu/pancreas

(410) 933-7262

Let’s Win: Sharing Science Solutions for Pancreatic Cancer

Enables patients, doctors and researchers to share cutting-edge pancreatic cancer treatments and trials.

letswinpc.org

Prostate Cancer


Prostate Cancer Foundation
pcf.org | (310) 570-4700

Melanoma


Melanoma Research Foundation (MRF)
melanoma.org | (202) 347-9675

Ashkenazi Jewish Genetic Diseases


Bloom’s Syndrome Foundation
bloomssyndrome.org

Canavan Foundation
canavanfoundation.org | (866) 907-1847

Cystic Fibrosis Foundation
cff.org | (301) 951-4422

Familia Dysautonomia Foundation
familialdysautonomia.org | (212) 279-1066

Familial Hyperinsulinism
jewishgeneticdiseases.org/diseases

Fanconi Anemia Research Fund
fanconi.org | (541) 687-4658

National Gaucher Foundation
gaucherdisease.org | (800) 504-3189

The Children’s Fund for Glycogen Storage Disease Research
curegsd.org | (203) 272-7744

Joubert Syndrome 2
jsrdf.org | (614) 864-1362

Lipoamide Dehydrogenase Deficiency (E3)
jewishgeneticdiseases.org/diseases

Maple Syrup Urine Disease 1B
msud-support.org | (718) 741-2318

Murcolipidosis IV Foundation
ml4.org | (877) 654-5459

Nemaline Myopathy
jewishgeneticdiseases.org/diseases

National Niemann-Pick Disease Foundation
nnpdf.org | (920) 563-0930

Cure SMA (Spinal Muscular Atrophy)
curesma.org | (800) 886-1762

National Tay-Sachs & Allied Diseases Association
ntsad.org | (617) 277-4463

Usher Syndrome Coalition
usher-syndrome.org | (978) 637-2625

Walker Warburg
jewishgeneticdiseases.org/diseases

Sephardi/Mizrahi Jewish Genetic Diseases


Sephardic Health Organization for Referral & Education
shoreforlife.org

Cooley’s Anemia Foundation
thalassemia.org | (212) 279-8090

National Ataxia Foundation
ataxia.org

Cystic Fibrosis Foundation
cff.org | (301) 951-4422

MLD Foundation (Metachromatic Leukodystrophy)
mldfoundation.org | (503) 656-4808

APS Type 1 Foundation (Autoimmune Polyglandular Syndrome)
apstype1.org

Cure SMA (Spinal Muscular Atrophy)
curesma.org | (800) 886-1762

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